Counting Ourselves

Counting Ourselves Logo

2022 survey faq

You can read more details about the 2022 Survey below, or download the full Info Sheet.

Help promote the survey by putting up our flyer or poster.

What is this survey about?

Counting Ourselves is an anonymous online survey about the health of trans and non-binary people living in Aotearoa New Zealand. It was designed by and for trans and non-binary people. This survey collects information that we hope will improve the lives of people in our communities, by showing us:
  • how well trans and non-binary people are doing in our mental health and physical health compared to the rest of the population
  • the stigma, discrimination, and violence we experience as trans and non-binary people, including when that is compounded by racism or ableism
  • any barriers to accessing gender affirming care, such as hormones and surgeries, that we might face
  • our experiences in doctors’ clinics, hospitals, and other healthcare settings, which could be for gender affirming care or when we see someone about our general health face
Our first survey in 2018 has been used to advocate for better healthcare for trans people and to change other laws, policies and practices to improve the lives of trans and non-binary people in Aotearoa. Completing this 2022 survey will tell us what has changed since then, including the improvements and ongoing challenges. Counting Ourselves is informed by Kaupapa Māori research. Below is an extract from Dr Tāwhanga Nopera’s description of what this means for our research.
A Kaupapa Māori informed approach offers non-Māori researchers a hoa haere; an allied pathway towards empowering people’s lives. . . . A Kaupapa Māori informed approach is committed to including Māori people, our perspectives, voices and strategies as a means to improve life outcomes for people being researched.

Who can take part?

You can take part in this survey if you are:

  • trans or non-binary and,
  • aged 14 years or older and,
  • currently living in Aotearoa New Zealand.

It does not matter whether you use the specific terms ‘trans’ or ‘non-binary’ to describe yourself, whether you have transitioned or even plan to transition. This survey is for anyone whose gender is different from their sex assigned at birth, whatever term you use to describe your identity. There are many terms that people in our communities use. For example, these include:

  • trans, transgender, transsexual, takatāpui, or irawhiti
  • trans woman, trans feminine, or whakawahine
  • fa’afafine, fa’atama, fakaleiti or leiti, fakafifine, akava’ine, or vakasalewalewa
  • trans man, transmasculine, tangata ira tāne, fa’atama, or akatāne
  • non-binary, tāhine, genderqueer, irakē, gender fluid, irahuri, gender diverse, irahuhua, bi-gender, cross-dresser, pangender, demi-gender, agender or irakore 
  • Trans people filling out the survey might also identify as simply a woman or as a man

The more people who answer the survey, the stronger the evidence we will have to advocate for change. The greater diversity of people who answer, the more we can say about the health needs of people in different parts of the country, at all stages of their life, and for all our identities and communities.

How long will the survey take?

We expect it will take about 70 minutes to complete the survey online. The time taken may be less if you skip some sections or longer if you decide to write more about your experiences.

The survey is this long because there is so little information available about our communities. If you want to take a break, you can exit the survey and come back and finish it later. This option works if you use the same device and browser and have ‘cookies’ enabled in your browser. Our survey software will anonymously remember which response matches your browser and where you were up to.

We really appreciate it if people complete the full survey, but it is totally your choice how far through you go and how many questions you answer.

What are my rights?

  • The only questions that you have to answer are the first questions, to check you are trans or non-binary, live in Aotearoa, and are at least 14 years old. After that, you can skip any other questions, for any reason.
  • You can withdraw from the survey at any time before submitting it. If you start the survey and then wish to withdraw, you can return to the first page of the survey at any time and tick the option asking for all your responses to be erased.
  • The information you provide in this survey is anonymous. We do not collect anyone’s names or any other information that might be able to identify you.
  • We will collect your IP address, which is a unique number based on your internet connection. It does not identify you or your physical address. We will only use IP addresses to double check for multiple responses from the same person, and then we will delete all IP addresses.
  • We will not publish any results when the number of responses is so small or the comments made are so specific that someone could possibly guess who made them.
  • If you contact us asking for a printed copy of the survey, we will delete your contact details once we have posted you the survey. If you fill out the paper copy of the survey and post it back to us, we will put your answers into the computer and shred your paper survey.
  • Everyone’s online responses will be stored on password-protected University of Waikato accounts and computers. Only the research team will have access to these.

The Health and Disability Ethics Committee (Southern) granted us ethics approval for this survey (reference 2022 FULL 12683). If you have any ethical concerns about this research, you may phone them on 0800 4 ETHICS or send an email to hdecs@moh.govt.nz.

What types of questions will I be asked?

Many of these questions have been taken from large New Zealand surveys so that we can compare our experiences against the wider New Zealand population. For most questions, you just need to select from some ‘tick box’ response options. For some questions, you can write your response in more detail.

We only ask questions about things that are important for our communities to know. Some questions are about difficult topics that might be hard for you to answer. These include questions about hurting yourself, suicide, and experiences of being treated badly by other people, including emotional, physical, and sexual violence. We let you know when we are about to ask these sensitive questions and give you the option of ‘skipping’ past these ones without seeing them.

Who can I contact for support?

If you want to talk to someone about some of the sensitive issues raised in the survey, you can text or call 1737 to reach a counsellor 24 hours a day through the National Telehealth Service. You can also contact OutLine‘s confidential Rainbow helpline every evening from 6pm-9pm (Phone: 0800 688 5643; Email: info@outline.org.nz). We have listed some other helplines next to specific questions too and have a full list on the Support page. If you have any questions about any aspect of this survey, you can contact the research team by emailing kiaora@countingourselves.nz or by phoning us on 07 837 9216.